The First Calls to Make

After a TBI, there can be a lot of people who may be able to help — but knowing who to call first isn’t always obvious. Every family’s situation is different, but this is a suggested place to start, from the people closest to your child’s care to the programs and resources that may be available to your family.

Start with the people who know your child’s injury and recovery best. Ask what therapies or services they recommend, what may be needed next, and whether they can connect you with specialists, programs, or other resources. Your care team may also be able to provide documentation or recommendations that help with insurance, school, or financial assistance.

Ask to speak with a social worker, case manager, financial counselor, or other family-support staff. They may know about hospital financial assistance, community programs, transportation, equipment, support groups, and other resources available to families in your area.

Call your insurance company to understand what your plan covers and what it requires before treatment begins. Ask about benefits, prior authorization, in-network providers, therapy limits, and what to do if a recommended service is not covered. If something is denied, ask for the decision in writing and learn about your appeal options.

Look beyond your insurance plan. Depending on where you live and your child’s needs, state Medicaid programs, Medicaid waivers, children's health programs, disability services, nonprofit organizations, and other community resources may help with care or related costs. Eligibility varies, so it is worth asking what your family may qualify for.